Monday, March 1, 2010
I have to admit, I don't know what to do. Since I was disgnosed with RA in 2003, I have never had a remission as long as this one. I am officially 34 days without a flare. I am only on my methrexate and Enbrel, and am tapering off my prednisone (down to 5 mg)
My mild Florida winter has been full of extreme temperature changes every 3-4 days, that last year would have been pretty much incapacitating, keeping me home in bed on percocet and steroid packs and feeling miserable to boot. I have so much more stress at this time in my life (Job woes, job interviewing, son getting married,economy stinks) that I would normally have been pushed in to a flare.
I should be so happy enbracing the fact that I feel good for a change. I didn't start a new diet, eliminate foods or try some over the counter miracle drug. The only thing that may have made a difference is my going back on to my premarin (hormone replacement)after 3 years of fighting with my primary doc. ("you'll increase your risk of cancer or heart disease"....yeah, so I was on every biologic in the past 5 years, plus Rituxan, a chemo...and I'm still here. Difference is I feel more human not to be having 100 embarassing hot flashes a week; especially since I work in the nursery with newborns under overhead warmers..not cool to drip on the babies while I have the mother of all hot flashes.
I still, however feel guilty. Why should all my RA friends not be able to achieve some part of this happy and painless state? I live looking over on shoulder witing for the RA shoe to drop again, but in the meantime I catch up with some long overdue projects while I can.
At my last Rheumey visit in January (also my last clinical trial date marking 6 months since my last Rituxan and enbrel combo)we discussed moving in to another clinical trial using Actemra. I have been thinking about this for several weeks..I don't want to rock the good boat I am on right now with just the MTX and Enbrel. I like where I am right now and want to stay here for a while. So, after weeks of thinking I plan to just stay on the status quo and see where it takes me.
I have some interesting things ahead on the horizon, the most exciting is the possibility of a new job...should get word this week on that, I thought my interviews were excellent, and this time I can actually keep my fingers crossed!
Wish me luck, and have a pain-free day!
Posted by laurie at 9:47 AM